Previous Posts - Your Answers Are Within
 
Friday
Friday morning dawned, well mid morning, and I was feeling a little less self pity and determined to have a great time with our friends. They had kindly cooked a full english breakfast for all of us, it was totally yummy and a real treat from what I normally have. Our friends wanted to go down into Clovelly, a trip down memory lane, they had visited it many years earlier when they where a young couple.
They enjoyed the steep walk down through the village and once at the bottom they met up with me and hubby who had cheated once again and called upon the landrover service. I decided on this occasion not to walk on the beach, still fresh in my mind how difficult I had found it. I retired to the quay-side pub for a cup of tea while the others went for a walk along the beach. On their return I found out that the boys had had their photos taken standing inside the waterfall which cascades off the surrounding cliffs and onto the beach - boys will be boys they never really grow up do they?
Hubby decided to walk back up through Clovelly with our friends whilst I took the landrover service back to the carpark. All three red faced and breathing heavily after their steep walk we met on the car park and decided to find a local pub for a light lunch. We found a delightful pub with a picture postcard thatched roof, not far from Clovelly, to enjoy our lunch and a quiet drink.
Later that evening we enjoyed a superb meal of turkey and leek pie with a shortcrust pastry topping, prepared by our friends, followed by treacle steamed pudding and custard - scrumptious. We then retired for the evening in front of a roaring log fire, chatting away until the spoon thief arrived and reminded me it was time for bed.
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Thursday
Sorry about the delay but have not been good the last few days so here it goes.
It was always our intention to take it easy on Thursday because our friends where coming to stay with us for a couple of nights and I wanted to make sure I wasn't too tired for their arrival. The rain from the previous afternoon and night had continued into Thursday morning but was showing the first signs of clearing with the occasinal break in the cloud.
Hubby suggested that we had lunch at the cottage and if the weather improved we could have a short ride out to a local town, spend a couple of hours there and then return for an afternoon sleep. By the time we'd had lunch the sun was showing signs of making an appearence and hubby thought it might be a good idea to visit a local beach resort. So we settled on the resort of Westward Ho less than 10 miles away.
We parked up next to a huge Pebble Ridge which ran for some 2 miles in length, a most impressive sight, perhaps 30 to 40 foot high and made of huge pebbles. This is apparently a totally natural phenomenon which protects the surrounding area from the incoming tides. I found it extremely tiring even with hubby 's help to scale this ridge but was astounded by the fabulous sandy beach. It was even more tiring to get down off the ridge and onto the beach, but we made it down safely and had a slow walk on the flat beach with the clearing skys reflected in shallow pools - very beautiful.
We watched the waves crashing down onto the beach with a small group of surfers braving the elements. The spray drifting onto my face in the strong wind was very refreshing and invigorating, but we knew we couldn't stay long. It was some walk back and still the ridge was to be scaled. I found walking over the pebble ridge to be totally exhausting and couldn't wait to get back to the cottage for a well earned rest.
I slept for over two hours on our return and awaited our friends arrival, knowing I had not fully recovered from my afternoon exhertions and paid for it later that evening when I had to retire early. I had been looking so forward to our friends arrival but got upset because I couldn't enjoy their company; this was the inevitable payback for the enjoyment I had had earlier that day. There always seem to be a payback with this illness no matter how you try to pace yourself, it's so frustrating arrhhggg.
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Wednesday
After yesterday's episode of total exhaustion I decided to have a lie-in today in the hope of the spoon fairy paying me a return visit, alas she didn't, too busy elsewhere, maybe once a week is all you can expect. It was well after 11.00am when I finally came downstairs to be greeted by a beaming hubby who had already been out on a 3 hour walk to some secluded cove called " Mouthmill Cove".
We decided to stay at the cottage until after lunch to allow me more time to recoup my energy levels. We set off on a hour and half journey to visit The Japanese Garden & Bonsai Nursery at St. Mawgan, Newquay in Cornwall. This allowed me to rest further so on arrival I felt not too bad.
The Japanese gardens are beautifully set out with a bridge over a large pool with a small waterfall in one corner next to a Japanese tea house with bamboos and trees a plenty. The winding path goes through dense growths of bamboos with a surprise around each bend of water and stone features. The highlight for me was a covered area next to a raked gravel Zen garden, very relaxing and a beautiful place to sit and meditate which I did while hubby explored further, camera in hand.
It's only a small garden but sufficient to spend three quaters of an hour there taking in the variety of plants and well crafted Japanese structures. We then spent an enjoyable time looking around the exstensive collection of Bonsai's with hubby purchasing one for our own little Japanese Garden at home. It was a lovely larch tree with it's own monolith all in a little blue glazed pot.
On our return journey we visited the small Cornish town of Bude where we parked up and had a short stroll towards the beach. Unfortunately we didn't stay long as the weather broke and we got caught in a very heavy shower. From the look of the clouds rolling in off the sea plenty more were on the way. We had made the right decision with the rain setting in for the rest of the evening and night.
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Tuesday
Dawned a bright and sunny day, well it did according to hubby, it was still lovely when I arose from my deep slumber and got myself ready. My day was already planned out for me if I thought I would be up to it. " Nothing too strenuous today, honest. " hubby informed me. "A short drive down to Clovelly Court Gardens and Church and then down to the visitor's centre to catch the Landrover Service down to the harbour." Well that didn't sound too bad I thought.
Clovelly Court Gardens are all contained within Victorian Walls with restored greenhouses. It's a working garden that supplies all the fresh produce for the ancient manor house and still has sufficient left to sell to the general public. If you are down in this area it's well worth a visit, it really is beautifully set out and full of vibrant colours and the finest example of a Victorian Walled Garden I have ever seen.
If you pass through an arch and gate half way down the garden you are treated to some incredible views of rolling countryside leading down towards the coast and beyond. The ancient manor house is surrounded by finely maintained lawns and is very picturesque in it's settings, and guess what hubby was busy snapping away again.
We paid a short visit to the Parish Church of All Saints dating back to the 13th century and the graveyard contained generations of village families, sadly many of whom died far too young according to the headstones.
Back to the car and down to the visitors centre to catch the Landrover service down to the harbour. Well the driver was rather too quick for me in my delicate state and I felt quite sick with all the sharp turns but thankfully it was over in only a few minutes. Looking up at what I could see of the village of Clovelly I could understand my hubbys previous comments about not making it down by myself. The entire village looks like it's been glued to the hillside, extremely steep! I wondered how the locals coped with the walk everday, it's a traffic free zone, sledges and donkeys are used to take goods up and down the streets.
We went into the Red Lion pub adjoining the harbour and ordered fish and chips for lunch, you cant beat fish and chips at the seaside and we were not disappointed it was most enjoyable. Hubby likes trying out the different local ales on offer and had a pint of Dooms bar, tasted better than the name suggested he assured me while I had my usual .orange juice.
Suitably refreshed and rested we went for a short walk along the beach to a nearby waterfall known as The Devils Kitchen, but on route I took a turn for the worse, quite quickly all my energy just drained away and I needed to lie down on the peebles to rest . Hubby said I fell asleep for over half an hour and was oblivous to all that was happening around me. When I did wake up I didn't feel much better and it was a painfully slow walk back along the beach to the awaitng landrover. It's proving so difficult to judge what I can do! With this damn illnes the energy suddenly deserts you and leaves you feeling completely helpless. Hubby is getting used to it and takes it in his stride. I wished I could it really gets me down at times, it's SO frustrating.
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Monday
I awoke on Monday morning feeling surprisingly refreshed. At some time during the night I had been visited by the " Spoon Fairy " who replenished my cuttlery sevice with tea, soup and dessert spoons - wonderful, but how long would it last?
" Not too much today, please I want to keep some spoons in reserve "
" No probs, " hubby replied, " We'll visit Eldern Point and Hartland Point, they've both got car parks very close to them so very little walking, we'll take a little lunch and make an afternoon of it" he said.
We parked up on a National Trust car park at East Titchberry Farm, thatched cottage and outhouse, very idyllic with ducks wandering around. Only a very short slow walk to the viewpoint at Eldern Point, beautiful views across the sea and imposing views of the nearby cliff. We spent a pleasent 30 mins or so here admiring the views before making our way back to the car park.
Less then 10 minutes later we arrived at Hartland Point, a large car park and quite busy , parked up close to the coastal path and ate lunch overlooking the sea, very rewarding. The coastal path could be seen winding it's way up hill, quite steep in parts, oh dear I thought that looks strenuous.
" Do you fancy having a go or would you rather wait in the car? " Pete asked", I'm sure he can read my mind at times. Well your'e only here once so give it a go girl I thought to myself, " yes I'll come but take it slowly" I replied.
Very slowly we made our way up hill resting frequently whilst hubby picked wild blackberrys for me, he his a darling. Not for the first time we were overtaken by elderly people, a bit disheartening to be honest to see someone so much older than yourself having no difficulty whilst I struggled like a chain smoker gasping for breath. But I got there eventually to be rewarded with splendid views in all directions, a ship wreck and a lighthouse so well worth the effort. We rested at the top, well I rested while hubby continued to click away, " smile " he would say not realising, and how could he, that I hadn't the energy to smile - so a half smile half grimace would have to make do. The return was just as torturous but in the end we arrived back at the car totally wiped out . I needed to rest and soon. I felt sure I was going to pass out but thankfully I was spared and fell asleep in the car on our way back.
The sun was still shining when we arrived back at the cottage, " Fancy a nice cup of tea in the garden before you go to bed? " hubby asked. A very welcome cup of Red Bush! and Pete had something a little stonger of course. We looked out onto a field full of cows - you can't beat the countryside to lift your spirits a little.
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Sunday
Hubby up early, I think someone forgot to tell him he's supposed to be on holiday. He brought my tablets and breakfast in bed and off he went at 7.30 am for a walk down into Clovelly to check out the route. I was awoken at 8.30am with a message and photo of Clovelly Harbour " just arrived, great views but very steep, no one about, streets clear of tourists great for taking photos " he does love to take photos bless him.
I eventually got downstairs at 11.00am to be greeted by my recently returned hubby red in the face from his mornings exertions. "Blimey that's steep, it shows how much out of condition I am", he said. Tell me about it I thought to myself. " Bloody great big bull in the top field" he informed me.
" what did you do? " I asked.
" Well, kept my eyes down, stuck to the edge, breathed deeply and confidently walked passed him" he replied.
He then explained that we could catch a Landrover to the bottom of Clovelly and back to the top for £2 each way per person, and that would be the only way I would get to see part of the village, oh well better I see some of it rather than none of it I thought. Hubby got his maps out again once again and suggested a visit to a local Abbey some 5 miles away if I was feeling upto it. Not too much walking there I suppose, so after lunch we where on our way.
A little history about Hartland Abbey, the last Abbey to be dissolved by King Henry VIII and given to the keeper of the kings wine cellars, now that's what I call a perk of the job. Been in the same family ever since, quite remarkable really, beautiful gardens from what I could see and very impressive from the outside. Hubby insisted on taking a few photos in the garden before we went inside the Abbey for a walk around.
I was still feeling the strain from yesterday when we went inside and before long I had to ask if it was ok to sit down on one of the chairs because I was feeling faint . I missed all the information about the dining room with my head feeling like it was everwhere except where it should have been. Apparently hubby told me later that one of the owners bought a table to seat 20+ guests for £10 back in the 1930's and todays value is over £ 300,000, now that's what I call a bargain.
We slowly made our way around the Abbey, but missed some of the rooms out as it was too much to cope with, spoons once again in very short supply. Once outside I told hubby I needed to sit down and have a cup of tea and rest, " ok you do that and I'll go on that walk down to the sea that the man on the gate told us about. "
" How long will you be? I asked. He thought it would take about an hour and we arranged to meet on the bench at the front of the Abbey.
Lemon and ginger tea and a slice of tea loaf, nice but it did little to replenish my energy levels. I made my way slowly around to the benches to sit in the sun and await my hubby's return. Sometime later I awoke to see him, grinning, camera in hand. " Been asleep have we? "
" I think so " I replied . He then showed me a photo he had taken moments earlier with me fast asleep sitting upright; he thought it most amusing.
" Let's go to Hartland Quay " hubby said "it's only a few miles away with what looks like impressive scenery. There's a hotel and car park, so no long walks. " I agreed and we were once again on our way. Only ten minutes later we were parked up, but I was too tired to get out the car so hubby went off on his own again. He loves all things to do with rocks and cliffs and from what I could see from the car park we were surrounded with some spectacular views. He returned some time later and persuaded me to have a look with the bribe of a drink in the local hotel - all very nice but more than enough for the day. Exhausted we returned to the cottage for a good nights sleep.
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Holiday in Clovelly North Devon 18th Sept to 25th Sept
Over the coming few days I will, energy providing, give you an account of how it feels to holiday with CFS/ME and just how frustrating and limiting the experience can be.
My Daily Journal
Saturday:
All the necessary preperations carried out: tablets, fresh vegetables for juicing, juicing machine (can't leave the house without that), luggage all packed by hubby, sat nav set, approx journey time three and three quarter hours to our destinations of Clovelly in North Devon.
The journey went off without any problems, felt ok for most of the time but needed to stray off the main route to find a place to have some food and a toilet break. Stopped in a small village at a very old Country Inn, "The Stags Inn" and had a break for one hour. Lunch consisted of locally reared ham, organic egg, chips and salad washed down with my usual orange juice and hubby had a pint of the local brew. All very tasty and enjoyable, suitably rested and refreshed we were quickly on our way to our final destination.
We arrived at our cottage at Burscott, Clovelly at 3.45 p.m. and were greeted by the house keeper who explained the layout and facilities of the cottage. Very nice, lovely looking cottage and we were not dissapointed. Sometimes photographs can be very misleading but that was not the case. Well laid out and all the amentities you could wish for, oven, microwave, fridge, washing machine, dish washer, tumble dryer,T.V. DVD player, it had the lot including wonderful views from the kitchen window over the Devon countryside.
We settled in and decided to go for a short walk to explore our surroundings, hubby got the map out and said we could try a walk to the top end of Clovelly approx half a mile away. Over two stiles and three small fields later we arrived at the school house and I knew I was struggling, legs like lead I had to stop to rest. Hubby went down the lane to see how much further it was to go, he returned shortly to tell me " there's no way you will make it , it's too steep and too far ".
So we headed off back to the cottage. The return journey quickly sapped my remaining energy and I couldn't even raise my legs over the stiles without hubbys help. We eventually made it back, exhausted I lay down on the sofa to rest, well too much for one day I thought take it easy tomorrow.
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I have blogged previously about my concerns on the safety of my Amalgam Fillings, see attached links..

http://www.youranswerswithin.com/2/post/2010/07/mercury-fillings-hidden-cause-of-mecfs.html 

http://www.youranswerswithin.com/2/post/2010/07/toxicity-of-amalgam-fillings.html

With my hubbys support we decided that we have tried many things to overcome my symptoms associated with CFS/ME and the safe removal of my amalgams would hopefully be beneficial to me on my long road to recovery.
Now I knew I had a lot of amalgams but it was only during my consultation and extensive examination that I found out the true scale of the problem, a grand total of 20 amalgams, surely that amount can't be good for a healthy person let alone for one suffering from CFS/ME with it's complications of poorly performing immune system, fatigued adrenals, under performing digestion system etc, etc you get the picture.
The procedures used by this Dental Practice were explained in some detail so for anyone thinking of undergoing a similar removal of their amalgams read on….. During the treatment the amalgam filling(s) are removed by sectioning, this causes mercury vapor to be released. This vapor is captured my equipment with external venting from a high powered suction unit. It is also backed up by a separate, powerful extractor fan and as a final precaution the patient wears a small nose mask to breath fresh oxygen for the duration of the procedure. Copious amounts of water is used to cool the amalgams during the sectioning procedure to further reduce the amount of mercury vapor being released. This water is removed by the dental nurse using high speed suctioning.
The Dentist also explained that I should take supplements to aid with detoxification during the time the removal procedures are being carried out and to this end supplied me with the following list, which he said I should check out with my Nutrionist before commencing, Multi-Vitamins, Probiotics, Digestive Enzymes, Fish Oils, Charcoal, Sulphur(garlic with Biotin), Selenium and Vitamin C.
Due to the amount of amalgams requiring removal he hoped to carry out the treatment over a period of four sessions lasting no more than 50 minutes. Depending on how I was coping, more frequent shorter sessions may be required. He also pointed out the following and to quote him " We all know mercury is poisonous but official guidelines have shown no real links to any known dangers of amalgam fillings " so no surprises there.
There are no guarantees with this procedure, so it is the case of research what you can and take all the evidence available and then make your own minds up. It's not a cheap option to take, in my case the safe removal of all my amalgam fillings is £3,200 so it's quite an investment to make but if, and it's a big if, it helps me to recover my life it will have been an investment worth making.
I hope to let you know how the procedures are going once the treatment commences so watch this space for regular updates. I nearly forgot to tell you that 2 of the teeth may require crowns and there maybe an additional root canal filling as well, which would mean an extra £1,500 approx so here's to hoping I don't require that.
Quote of the day
Standing in the inspiring vision of my future, I boldly take every step - large and small - with courage and intent. - Jonathan Lockwood Huie
 
 
Night out in London

As a treat for my birthday my hubby arranged for a weekend break away in London to see Sister Act at the London Palladium, followed by a meal in 'Floridita' a Cuban restuarant and dance club that plays live latin music. We continue to push the boundaries, although on the previous three occasions when we have been to the theatre in London I have been so tired I have struggled to finish my meal.
We travelled down by car and it took a little over 2 hours to reach our hotel without any dramas on the way. I had felt surpisingly well on the journey considering what a very poor day friday had turned out to be with bad headaches and low energy. First problem of the day, at checkin we were informed we couldn't have a room until 2 o'clock, no big deal you might think but we had travelled down in casual clothing expecting to change at the hotel into something a little more dressed up for the theatre and Floriditas. Once we explained the situation the receptionist said we could have a twin room which was available if we didn't mind single beds, well beggars can't be choosers so we gratefully accepted. Second problem of the day, hubby noticed on the reception desk that the central line underground we had planned to use to get into central London was closed for maintenance work . The receptionist came to our assistence once again telling us that london Underground was laying on a free bus service to take passengers to the next available tube station, in our case " Willesden junction " on the" Bakerloo Line", a direct link to " Oxford Circus " and the London Palladium.
After changing, and a brief rest we went on our way to catch the bus at North Acton tube station, and after a short while we were on the underground and on our way. During the journey I could feel the spoons running out and I thought here we go again, give me a break somebody! I could see by the look on my hubbys face that he could tell I was starting to falter, he told me to close my eyes and try to relax. I tried using my meditation techniques I use at home and by the time we arrived at our destination the worst had passed and I managed to locate a few spare spoons from somewhere lol.
We had 45 minutes to spare before we needed to go to the theatre so we used it wisely by having a drink and rest break at the nearby Libre a small restuarant, more spoons located thankfully. On arrival at the theatre we were informed that we could exchange our tickets for better seats and to make our way to the box office. My hubby cheekily asked at the box office if they had any seats on the front row, " yes sir" came the reply " would you like those?"
" yes please " replied my husband who couldn't believe our luck.
Two seats on the front row of the stalls right next to the orchestrial pit what a scoop!Fabulous seats, we were both delighted with our good fortune, good fortune that would desert us later that night. The show was everything we had hoped for, full of energy, full of laughter and full of great music, it was a joy to behold. At times I was totally mesmerized by the conductor of the show, you could see from such close proximity the effort he was putting in to control the orchestra and it was paying off, wonderful to see and well done to him for delivering a night to remember.
After the show we made our way towards the restuarent on the edge of Soho, it was a slow walk, the buzz from the show was beginning to fade along with it my remaining spoons but we made it there eventually. Well what can I say about the Floridita restuarant, very smart looking establishment, very polite staff, first impressions very good and that always puts you at ease.
Hubby had a champagne cobbler cocktail which he said was very nice. I didn't want to try anything alocholic, I have fallen out with all alochol big style since coming down with CFS/ME, instead I had a mango and gingerbeer cocktail which was most refreshing. We where later shown to our table situated directly in front of a large speaker with Latin music thankfully not playing too loudly in the background.
The menu was very inviting and after consulting with the waiter I settled on grilled chicken topped with a green tomatoe and chillie salsa, with a blackbean side order - Cuban Favourite. Not surprisingly hubby opted for 16oz sirloin steak, medium of course, with green pepper sauce, yucca chips and mushrooms. We didn't have to wait long, very efficient service and delicious food. The steak was finished off without any complaints, my only complaint being there was too much chicken for me but as ever hubby was at hand to help finish it off.
The restuarant come dance club quickly began to fill up and the background noise was beginning to get to me as it had done on a previous night out with friends. I so wanted to stay and listen to the live band and watch people dance to the Latin beat but hubby could see the signs in my face long before it became evident to me. He suggested it was better we left because we still had some way to go back to the hotel especially with having to wait for and catching a bus.
We made it slowly back to Willesden Junction tube station and waited for only 5 minutes for our return bus back to North Acton tube station. This is where our good fortune ran out, the driver didn't stop in the same place we got on at, and when he did stop the bus ,he didn't announce that this was the stop for North Acton and by the time we realised he was on his way again. So what should have been a 10 minute return journey turned into a nightmare journey of nearly 2 hours by the time we had visited all the stops along the central line all the way out to West Ruislip.
Now before you start to shake your heads the driver was hopeless 3 other passengers missed their stops due to the driver not announcing where he was stopping and these appeared to be locals not tourists like me and my hubby. It was a very uncomfortable and tiring journey only made bearable by 2 young gay guys who got onto the bus. For 20 minutes they seemed oblivious to others as they argued at the top of their voices non stop about their love lives and who was being faithful and unfaithful. It was amazing to hear the goings on of these two young lads, the highlight for me was when one of them with a very strong Irish accent asked his partner to swear on his mothers life that he had been faithful to him, classic stuff even his partner laughed at him for that one.
They were still at it as we all eventually got off the bus at North Acton - priceless, just priceless, young love it's wonderful isn't it.
Overall, out of the 4 occassions we have been to London to watch shows since being diagnosed with CFS/ME, I managed to cope with this one the best. I even managed to enjoy my meal, instead of being too exhausted to finish like on previous occassions. So I will take this one to the bank and hope to build on that in the future, knowing full well that at any minute the spoon catcher can unexpectedly appear and selfishly take everything for himself!
 
 
Happy birthday mum...have a great day and dont use up all ya spoons!!
lots of love from zoran,amy,natalia and dusan xxx


p.s..feel free everyone to leave a comment ...x